The Care Partner Support
page is a place to find
resources to support the
important role you play in
your loved one’s wellness.
You may feel tired, lonely, uncertain, or even
frustrated. That’s all completely normal.
Parkinson’s disease is a life-changing diagnosis that can be a challenge for anyone. As a care partner, attending to your loved one’s physical and emotional health is critical, but looking after your own well-being is just as important. Don’t feel like you need to go at it alone.
Recognize the symptoms of “off” time
It's important to recognize changes and communicate them to your loved one and their medical team.
THERE ARE MANY SIGNS OF “OFF” EPISODES, INCLUDING:
PARTIAL OR TOTAL
INABILITY TO MOVE
As a care partner you may notice changes in your loved one.
They may not realize these changes or may hesitate to admit them. It's important to observe your loved one's symptoms and share what you’re seeing with them and their care team.
The Doctor Discussion Guide can help you and your loved one keep track of symptoms over time and note changes. Take good notes and share your findings at your next doctor visit. Even noting subtle changes in symptoms may help make a difference.
NOURIANZ works with your loved one's current levodopa/carbidopa regimen and helps to reduce “off” episodes in adult patients with PD.
Care Partners Need Care Too
Caring for your partner with PD can feel like a full-time job, so it’s easy to lose track and neglect your own well-being. It’s equally important to take care of yourself.
Your loved one may become more dependent on you over time, and it can be easy to get overwhelmed. Take it day by day and try not to be too hard on yourself when things get difficult. Setting aside time to rest, recharge, and medicate can help you assess your own needs.
Be open to change
You and your loved one will have to adjust to new norms along the way. It’s important to stay positive and communicate as you travel along this journey. Consider joining a care partner support group to reach out and connect with others. Swapping stories with others on a similar path can open your eyes to new ways of approaching obstacles.
Listen to your body
It’s important to manage both your mental and physical needs so that you don’t get burnt out. Try to keep your body in motion. Stay physically active, whether that’s taking a yoga class or a walk in your neighborhood. And don’t forget to stick to a healthy diet to help you feel your best.
For more tips and support, sign up for
ongoing messages from NOURIANZ
Additional Resources for Care Partners
There are many people just like you on a similar journey with a partner with Parkinson’s disease. Discover their stories and find more useful tips below.
The Michael J. Fox Foundationwww.michaeljfox.org/news/care-partners
American Parkinson Disease Associationwww.apdaparkinson.org/article/being-a-parkinsons-care-partner/
Davis Phinney Foundation for Parkinson’shttps://davisphinneyfoundation.org/resources/parkinsons-care-partner-resources/
Parkinson & Movement Disorder Alliancehttps://www.pmdalliance.org/care-partners-family-members-adult-children/